Invisible Illness Poll - Hate to Look Great?
1.
What is the most frustrating or annoying comment people make about your illness?
But you look so good (or you look fine)
You can't be in that much pain. Maybe you just want attention
If you stopped thinking about it and went back to work...
Your illness is caused by stress
Just pray harder
2.
What is the nicest thing someone can say?
Nothing, just listen
"I don't understand what you're going through but I'm here if you need me."
Give me a hug and say, "I care."
If they recommend cures or treatments they've heard about give me literature about it.
Tell me I'm lucky because it could be so much worse.
Say, "I know exactly how you feel" and then hear how they overcame it.
Other:
3.
When people say, "You look good!" or "You look like you're feeling much better," -- and you're not--how do you respond?
I smile and say nothing
I say, "I'm so glad i don't look like how I feel."
I say, "Thanks."
I say, "Things could always be worse."
I say, "Actually, I still am really hurting..."
Other:
4.
Finish this comment and add your name, email address and illness to the end of it. If we use your comment in press materials we will contact you first for permission. Please keep it under 3 sentences.
QUESTION: I'm so glad that National Invisible Chronic Illness Awareness Week exists because...
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